So much has happened in the last four days. I don't have the will to write it all down and one day I might regret that. Maybe I will see fit to write a more full record at another time.
I came home from holiday on Tuesday night and had made a decision to go and stay with Dad in an attempt to offer extra support. He has been fearful and agitated for a couple of weeks, I had asked for help from the dementia helpline and the GP and had made a small amount of progress but I was not happy with the amount of distress Dad was experiencing.
He woke me during the night, in a loop of fear. In the morning it was hard to settle him for breakfast and then i regretfully left to go to work. On the same day, Mum came home from three months in hospital and I had hoped it would be reassuring. I cut the work day short to be with my parents for Mum's transition to home. Dad was suspicious and irritable with me, hiding from me and also making threatening gestures.
I managed to establish that he didn't know who I was and I decided to make sure Mum was in bed then leave. I didn't want to go to sleep there. It was a good plan but like everything I try to achieve for my parents, too little, too late.
Dad barged into me and made threatening punching gestures. I was unhurt but felt unsafe and was unsure about leaving Mum.
I called the police but Dad soon fell asleep and as there was no threat, they made it clear that they didn't like me calling them and then left. My mistake was calling the wrong service.
The following day I returned to the family home and called an ambulance for Dad. He wasn't showing any sign of violence but he was distressed and who knows when the next episode of violence might happen. Or who to.
Less than 24 hours after Mum's return home, I was sending Dad away. Mum wasn't happy and has for a long time been frustrating in her refusal to accept that Dad is actually sick. She was critical of my actions and I got into a screaming match with her. The policeman who was accompanying the ambulance came back inside after having left to reprimand me on my treatment of my mother. I can't blame him, I was out of control but it was a cruel twist in a situation which i have been desperately trying to improve for many months.
Dad has been admitted to hospital and the doctors have agreed that he is suffering greatly. They will start him on antipsychotics in an attempt to improve his state of mind.
Mum is alone at home and I can't trust myself to deal with her hectoring so she remains alone.
And the thing that keeps going round in my head is the recent time Dad asked me to take him to his favourite coffee shop but the access is difficult so I said no and now maybe I have lost my chance to give him that tiny bit of joy.
Brutal sounds accurate :( Can you bring an aide into mum's house?
ReplyDeleteThere will be many people to help mum: nurses, physios, OTs but not over the long weekend.
DeleteOh Kylie, I am so sorry for your problems. It seems there is no good way. I am glad you did not spend the night after threats from your father. Maybe you can get the right help. Can anyone else reassure your mother that your father is sick?
ReplyDeleteI was probably being overly cautious but that's easy to say now.
DeleteMum won't be told
Oh Kylie. My heart aches with and for you. So very much. Hugs.
ReplyDeleteThank you
DeleteI'm sorry to hear of your continuing ordeal. I wish I could give you some useful advice but it's not a situation I have experience of so I'll keep quiet. Yes, your dad's new violent tendencies are worrying.
ReplyDeleteHaving Dad admitted was the best thing. There's a difficult process ahead but I have managed to get them both assessed for aged care and can make that a reality
DeleteYou can only do what you can do, and do it with good grace. Push the professional medical and care system to do what they are trained to do, with your oversight.
ReplyDeleteI think I'm doing that now but I probably could have been more aggressive about it.
DeleteHindsight is always 20/20
Dealing with the irrational is very difficult. We find it hard to follow the thinking if the irrational. I hope things settle down for you. It's a very difficult situation.
ReplyDeleteWith both parents having been in hospital, we can get the aged care assessments needed. After that I just have to find a place for them to go. I feel like the most difficult part is over
DeleteI’m sorry you are going through this. We had a difficult time with Mom as her cognitive decline happened. Unfortunately it is a difficult situation to navigate.
DeleteThank you, Anne. I seem to be always a step behind even though I'm trying hard to stay in front and I find that frustrating, especially because dad has been so distressed.
DeleteI am quietly hopeful that we are through the worst.
There is not enough help for these situations and then we, the children, are left feeling like guilty failures. We are just expected to know what to do and have the capability to look after our parents.
ReplyDeleteI wish I could have helped my dad do a few of the things he wanted to do at the end of his life, but I just didn't have the resources - it goes round in my head too.
I hope things do get better for you.
Sx
Ms Scarlet, thank you. I know it's normal to have regrets but it's reassuring to hear it first hand.
DeleteI'm sorry you have it running round your head, though.
It’s understandable to have moments of doubt or regret, especially when navigating such complex and emotional situations, but please know that you are doing your best. You’ve had to make difficult decisions, and sometimes, they don't unfold the way we hope. The fact that you’re seeking the best care for your father and trying to manage your mother’s needs shows your unwavering commitment to both of them, even when it feels impossible.
ReplyDeleteThe thoughts of "what if" will always be there, but I encourage you to be gentle with yourself. You cannot change what has happened, but you are making important choices in a deeply challenging time. I hope that in time, your father receives the care he needs and that your mom is able to find a way to accept the situation with more understanding, even if that feels far off now.
Take care of yourself too—this is a lot to carry alone. And if there’s a moment to give yourself a break, I hope you can find it.
Thats wonderful advice, Melody. It's exactly what I would say to anybody but none of us are good at being gentle to ourselves
DeleteOh Kylie this is all so heartbreaking for you. Do you have any sibling support? You are bravely tackling all this alone and it's not easy. You must have been so frightened. I haven't had to deal with aging parents but I know my daughter (and granddaughter) have to deal with my aging ex and his ten or twenty calls a day so I'm circumspect on when I call as I'm in that elder bracket myself. it's an awful burden. You're in my thoughts and always remember you are doing your very best with what you have. Take time for you.
ReplyDeleteXO
WWW
Thank you, Mary. I was frightened, probably less frightened of Dad and more about what it all meant but at the time it was just fear.
DeleteMy siblings took some time to step up but have become more involved now.
It's funny you talk about phone calls, I resented them for a little bit but then I decided it was a priviledge to be treated as a safe person and I am glad i did because Dad has forgotten how to use a phone and I won't ever be his phone support again
Thank you for sharing this Kylie. You are an innately good and kind person and being caught in this tangled situation with your parents must have been very distressing. At least your father is in a safe place now so that must give you some peace of mind. Please don't beat yourself up about the coffee shop request for you have been the best daughter your parents could have hoped for. I guess things have moved on since you published this blogpost - eleven days ago now. I will look out for an update on the situation.
ReplyDeleteThank you for your encouragement. Things have indeed moved on and I will update when I can
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