Saturday, 29 November 2008

# 27 thankful for red shoes


Today I bought a new pair of shoes. These ones here. There is an amazing story to match these shoes and it's time for me to tell it.
I have mentioned here once before that I am affected by a disease called Charcot-Marie-Tooth (CMT). I don't want to get into a dicussion of the disease right now ( ask whatever you want, I'm just leaving it out in favour of the story) but what I will tell you is that it can make walking difficult. A flat pathway or floor is good but something as simple as a thick plush carpet can be problematic, sand is a near impossibility.....
buying shoes is an enormous problem, too. You see, it needs to be just the right height, too flat and it upsets balance, too high and walking becomes near impossible. The shoe needs to grip the foot, walking takes enough concentration without the added hassle of a shoe that might slip off. The shoe will preferably be quite light because the heavier it is the more tired it makes you and the more tired you get the harder it is to walk.
So, you can see that the shoe buying options are narrowing by the minute. I like to imagine myself as a snappy kind of a dresser but I have always been let down by my shoes, restricted to matronly things or the much maligned crocs.

A few months ago I found myself in a church service where there were some guests of our ministers present. My minister asked if I wanted them to pray for me, with me.
Now, I'm not a fan of being prayed over in my presence, I always feel immensely exposed but not wanting to be churlish I agreed. This couple knew nothing about me but they prayed and prayed. Eventually the man told me that he thought there was something to do with dancing in my future. "I would love to dance" I said "but...." I explained the impossibility of me ever dancing and the woman decided to pray for my healing.
By this time I felt like some kind of prize show exhibit but I submitted to further prayer, I was declared healed and told to go and claim the healing I had been given.

How do you claim healing? How do you live the life of a healthy person when you live with disability? How do you imagine that you can be normal when you have never known normality?

The next day I decided to wear a pair of shoes that I had always found tiring, shoes that I could not have worn for long periods, shoes that I didn't wear if I could possibly wear my beloved crocs. It was the best I could come up with at the time. I have worn those shoes every day since.

Right now I can't tell you I am fully healed. I can tell you I find shoe buying easier. I seem to have just a bit better tolerance of varying styles and heights. I think, though I may be kidding myself, that I walk a bit more normally than I did, with less of the CMT gait. I think I have a bit more stability and a bit more stamina but I can still find myself struggling to keep up with the crowd.

I find this story unbelievable, frightening even, but I have to tell you that a few months back I would not have bought the shoes I did today. I think that this story will continue but if it doesn't, if I never improve on what I am today, I will be grateful for just a few more options in fashionable footwear.

14 comments:

  1. Hi Kylie.... what a wonderful story. I'm glad to hear that your condition is slowly starting to fade and you can be more active. And you get to wear some styling footwear too. Pretty soon you'll be strutting around in 6-inch stilettos!

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  2. Beautiful! You, picture, the story, the shoes.

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  3. Hi Kylie,

    You have inspired me and your story gives me hope. Claim the healing, that sounds like sound advice. Thank you very much dear.

    Best wishes,

    Skeeter

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  4. heya brilliant bob,
    those stilettos are some shoe, huh?

    thanks for your faith and your friendship
    k

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  5. SKEETER :)
    i can't tell you how glad i am that you are still around! nobody wanted to see you just disappear into the ether. be sure of that.

    i'm hoping that telling the story is the next step to making that claim and i am delighted that you all are being so gracious about it

    keep chasing the Sun
    xx

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  6. Beautiful story my friend,

    "There are more things in heaven and earth than are dreamt of in our philosophy".

    We docs are good sometimes at ignoring 'healing' which doesnt come from conventional methods...and I think thats our problem!

    What a testament to the power of faith, Thanks for sharing this story.

    Healing light, M

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  7. Lovely shoes.

    Thank you for this portrayal of how to accomodate problems encountered in Life's journey. That first sentence was the third draft and I still don't think I have conveyed what I mean. The healing power of prayer is incredible.


    "I don't think we're in Kansas anymore Toto!" :-)

    Cheers,
    M. xo

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  8. My Darling Kylie,

    I love you. You're beautiful. Remember my fellow Sniper Nerd when you had such a problem with my use of the word "beautiful?" I'm smiling from ear to ear. You are the true definition. And so my beautiful, beautiful friend, it is with so much love that I write this.

    You're smart, funny, write like a dream, thoughtful, kind, honest, introspective, loving, witty, brave, always brave. I love this post. I love you. You have taught me so much over the past year and I'm forever grateful. I know I was your first comment, EVER!!! And even if this was my last, I want you to know you would stay in my heart forever because you make me feel very strong and powerful. There's something about you and that red dress and those platform shoes that give me courage (adjust ceral box and green dress!).

    In all sincerety, I love you Kylie and thank you for this amazing post. You look gorgeous in those shoes. Be careful, they're red, don't get arrested for speeding!

    XO Suze ;)

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  9. Oh, and the new "Mini Photo" is hilarious. Love it, but miss the boob!!!

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  10. maith,
    i worry that my faith is inadequate for this but i am buoyed by the wonderful responses of my blogging family and i know that where my faith might be small the strength of the people surrounding me will overcome....

    thanks for your presence here
    k

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  11. hey mark,
    i probably said it all in my reply to maithri and i wont bore you with the same all over....

    i was thinking of your agm today, i hope it was better than expected

    love
    k

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  12. suzanne,
    i dont think i'd have a blog without all the readers who have come to me via you !
    you've been too flattering again, i must pay you more

    much love
    k

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  13. G'day Kylie,

    The A.G.M. was indeed better than expected. Thank you for your prayers. Have a good week.

    M. xo

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